Decoding Developmental Epilepsies
Sweepstakes Giveaway of Donated Taylor Swift Tickets
This may be the single largest fundraiser we've had in over 10 years fighting SCN8A epilepsy.
Posted May 8, 2024
Background & Context
We are a small nonprofit, yet are the leading SCN8A patient advocacy organization. We maintain the only SCN8A caregiver registry, and provide services directly to families and clinicians-including weekly family meetings with leading SCN8A researchers. This additional revenue will go directly into our scientific efforts, both existing and future.
Immediate Problem
We need to make sure that we aren't in violation of any laws if we have a sweepstakes for these concert tickets. We also need to address the issue of multiple entries. Here are the rules and regulations for the example mentioned above.
https://www.tapkat.org/the-cobra-experience/aEDvO9/rules
Work & Deliverables
We are a 501(c)(3) incorporated in D.C. We were given a pair of Taylor Swift concert tickets for an upcoming date in Germany. We don't have enough time to register with the DC Lottery to raffle these off, so we plan to have a sweepstakes. We have researched and found some others (https://www.tapkat.org/the-cobra-experience/aEDvO9) who are doing it legally and we intend to mirror what they've done.
Preparation Phase
- Review Submitted Materials and Links
Collaboration Phase
- Determine legality of our plan
Wrap Up
- Provide advice
Decoding Developmental Epilepsies
Our core mission is to improve the lives of rare epilepsy families by implementing cutting-edge programs and research. We collaborate with families, researchers, clinicians, and industry partners across the globe to more rapidly find answers for those impacted by rare and devastating epilepsy disorders.
Decoding Developmental Epilepsies
Our core mission is to improve the lives of rare epilepsy families by implementing cutting-edge programs and research. We collaborate with families, researchers, clinicians, and industry partners across the globe to more rapidly find answers for those impacted by rare and devastating epilepsy disorders.