Decoding Developmental Epilepsies
Data Use Agreement for NPO with researchers
This will help us maximize opportunities to use data to help save lives
Posted November 23, 2023
Background & Context
We just collected groundbreaking data in the rare disease space and now need to have data use agreements with our researchers so they can access and analyze the data safely and in compliance
Work & Deliverables
We need a simple but effective data use agreement to use with researchers and academic institutions so we can start analyzing very powerful data we have collected
Preparation Phase
- Meet briefly to determine if we are a good match
Collaboration Phase
- Help craft a DUA that meets the needs of our nonprofit and research partners
Wrap Up
- We can send it out for signatures and start analyzing data and saving lives!
Decoding Developmental Epilepsies
Our core mission is to improve the lives of rare epilepsy families by implementing cutting-edge programs and research. We collaborate with families, researchers, clinicians, and industry partners across the globe to more rapidly find answers for those impacted by rare and devastating epilepsy disorders.
Decoding Developmental Epilepsies
Our core mission is to improve the lives of rare epilepsy families by implementing cutting-edge programs and research. We collaborate with families, researchers, clinicians, and industry partners across the globe to more rapidly find answers for those impacted by rare and devastating epilepsy disorders.