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completed
Decoding Developmental Epilepsies

Data Use Agreement for NPO with researchers

This will help us maximize opportunities to use data to help save lives

Posted November 23, 2023

Background & Context

We just collected groundbreaking data in the rare disease space and now need to have data use agreements with our researchers so they can access and analyze the data safely and in compliance

Work & Deliverables

We need a simple but effective data use agreement to use with researchers and academic institutions so we can start analyzing very powerful data we have collected

Project Plan

Preparation Phase

  • Meet briefly to determine if we are a good match

Collaboration Phase

  • Help craft a DUA that meets the needs of our nonprofit and research partners

Wrap Up

  • We can send it out for signatures and start analyzing data and saving lives!

This project is complete!

This project has been completed thanks to the efforts of our volunteers.

Visit the Project Directory to check out other projects that still need your help!

Additional Information

  • Time Commitment: 1-5 hours
  • Training Provided: No
  • Site-Preference: Remote
  • Open to Law Students: No
  • Bar License(s) required: Any Bar License
  • Required Languages: None
  • Required Legal Expertise: None
  • Preferred Legal Expertise: Privacy and Data Security
  • Deliverables Due: December 1, 2023
  • Mentoring Provided: No
  • Supervision Provided: Yes
Decoding Developmental Epilepsies

Our core mission is to improve the lives of rare epilepsy families by implementing cutting-edge programs and research. We collaborate with families, researchers, clinicians, and industry partners across the globe to more rapidly find answers for those impacted by rare and devastating epilepsy disorders.

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